The real meaning of RSV

Kellen had his four-year well visit today.  I asked the doctor if he thought it’d be okay for Owen and I to take Kellen into school again, and I got the, “that doesn’t make me super comfortable, ” look.

Flu is on a downward trend, but still prevalent.  RSV is prevalent and still hasn’t peaked.

Boo Hoo.  Self pity party.

I really need to stay off Facebook for a while.  I get so jealous when I see so many other preemies out living normal lives.  I’ve gotten pretty good at not comparing Owen to the general population, but I sometimes can’t help but look at other preemies who have had tough courses and do a little comparing.  I know it’s not healthy and I don’t dwell on it much, but I have my moments.   It stings a little to see them doing things developmentally that Owen’s not yet, but what really bothers me is when it feels like we are the only ones who have such a tight lockdown.

Let me lick my wounds for a moment.

Owen didn’t even get to go to his brother’s birthday party.  I’m not sure who that makes me more sad for.  Kellen’s first question when I told him he was having a pool party was if Owen would be able to go.  I know he’d love to play in the pool with his brother.  Owen would have liked it too.  He’s such a social guy and the world deserves to be warmed by his sweet smile.

Last week I even canceled a well visit for Owen because I didn’t want to take him into the germ-filled clinic.  His doctor supported the decision.

I know isolation this time of year is the best thing we can do for Owen.  We had even tighter lockdown last year and still had nearly 50 days in the hospital due to respiratory illnesses.  Most of that was RSV related.

Can I tell you how much I hate those 3 little letters?  After seeing blogger friend, Hipster Hausfrau have both of her kids admitted to the hospital for RSV over the weekend, I had enough.  It was the Hasfrau’s birthday the day they got admitted…Happy Birthday, Leda!  So, in honor of the 8 days we are 35 together, I renamed RSV.

Sometimes there is no nice way to say it.

Sometimes there is no nice way to say it.

I also have a name for flu, but I figure there were enough f-bombs slung around during the Office Space clip yesterday.  I want to keep my PG rating.

Tangential thought, wouldn’t it be great if we could go Office Space on flu and RSV?  I’d get some real enjoyment kicking the snot (literally) right out of those viruses.

So, fellow preemie moms sticking to your isolation plans.  Today, I salute you.  This sucks, but we’re in it together. I send you hugs of support and hopefully gave you a little smile today.  Need a space to vent about being stuck at home…my comment section is open.

xoxo

PS – If you’re like me and love statistics (when the math is performed by other people).  Here is the link to the CDC RSV tracker.  Click the state to find your area.

© Copyright Tatum, All rights Reserved. Written For: Ain't No Roller Coaster

13 thoughts on “The real meaning of RSV

  1. I really, really wish I had never agreed to go into the office one day a week. Even with first winter with a preemie mama style hand washing, sanitizing, flu shot, and otherwise RSV isolation, I contracted influenza type A from a co-worker.

    This means the last week was an exercise in terror for my family. Luckily, Gammy came to the rescue and took our son to her house for 5 days, and my son and husband are looking like their flu shots took, so far. It felt like the scene in Sense & Sensibility where Marianne gets a fever and Charlotte freaks out and gets the baby out of there.

    The feelings of failure, depression, and anxiety over the whole thing no know bounds. I’d like to thank you for those f-bombs. They gave me a bright spot in an otherwise horrid week. Even during his NICU stay, I was never away from him for 5 whole days.

    • Oh, Mommy Peace. I so relate. We did everything right last year and still managed to get RSV in the house. I was already feeling commadarie with you and then you pulled out the Jane Austen reference and I think we might be friends for life. I hope you’re feeling better and I’m happy to hear the rest of your family has stayed healthy so far. Virtual hugs coming your way.

  2. This is our first year of isolation. I’m already anxious to get her out of the house. I see newborns out shopping and it kills me I can’t take my 9 month old with me. She will be a year old before she ever really left our house or hospital. I feel for you! You are very inspiring, and I love to read your blog!

    • Thank you, Alicia. I always feel that way too. Now it’s when I take Kellen to school and I see little kids that are Owen’s age going. I always feel like Owen should be there. Good thing our kids have such good company at home to keep them entertained 😉

  3. I completely relate about trying not to compare to typical developing kids, but find it harder to not compare other preemies with a complex course. We are in complete lockdown too! It’s my son’s first winter home and we can’t chance it (he’s a former 24 weeker.) Glad to know I’m not alone. Especially since people don’t understand and some think we are just paranoid germaphobes.

      • That sounds great. Thank you! I’ll look on your page. I’ve been sharing a lot of your blog posts on my Facebook until I have the courage to start a blog of my own. 🙂

  4. Complete lock-down here as well (2nd year in a row) with two older siblings to boot. I might just run away to the beach for the entire month of February. Someone would watch my kids, right?? Surely.

  5. I have triplets that are 1 year old on the 26th of this month. They were born at 27 weeks because my son broke my water (only his sac) and emergency c-section we went. What we did not know was the long haul we were going to have with his health (especially lung related). This past Tuesday was his first time off oxygen (I really disagreed with the doctors that it was time to give him a try off oxygen especially during flu season), he is off during the day then is on 1/4L at night. I know that everyone thinks I’m crazy (which honestly I have triplets so I am a little crazy) but I am paranoid 24/7 about my kids, we have been through enough (coming into the NICU for the first 4 months of their lives not knowing if they were going to make it through the day, especially Wyatt). So I pray that he does not get RSV (we get the synagis shot monthly but I know there is a chance we can still get it).

    • It’s so hard to not be paranoid when we’ve seen our kids go through so much. I totally get it. Sending you healthy thoughts and a successful oxygen wean, Crystal.

  6. Thank you so much for the shout out and birthday wishes, Tatum! Both kids are home and recovering, thank goodness! We’re no longer on lockdown, which is great, of course. But our recent experience reveals the challenges of “normalizing.” It’s a complex calculus of protection and fostering typical experiences. This time, we bombed. Thankfully, the kids are ok, but it was scary going, and the flashbacks were horrid. Putting my healthy, basically full term baby on o2 sucked. Putting my ex28 weeker back on o2 after a year off sucked. RSV. It IS really shitty. But as usual, I’m impressed by how we endure, how we survive. How do we all do it? We do it because we have no choice. And we find a way to make it work, to find joy even among the stress.

    • Well said, Hausfrau, well said. I’m happy to hear everyone is back at home. I hope no one had to endure much suctioning…I fear ever having to hold down a kid for suctioning again. Maybe you’ll get some birthday celebrating while you cuddle your kids at home this weekend?

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