Forward Progress Only, Please

Maybe we jinxed ourselves by being part of a news report on how good he was doing?

Maybe it’s teething?  It’s true, teething can cause regression in other development areas.

Maybe, as was suggested by his doctor today, it’s because of all the gross motor development he’s been doing?

Maybe he was getting bored with the limited varieties of food his allergies allow him to eat.

Maybe he’s not as hungry after we went up on his formula calories?

I don’t know, what’s caused it, but I’m guessing you have already figured out Owen’s not doing so well with eating lately.  Actually, it’s pretty much been since Thanksgiving.  He was orally eating 300-400 calories a day, but now, he’s getting 50-70 on a good day.

We still sit three times a day, but most days he only eats one of the three.  I keep repeating to him (and myself) “I will not give up.  I will not give up.  I will not give up.”

We keep trying new foods.  Pickles, watermelon, apples dipped in caramel, carrots dipped in ranch dressing (allergy note, most ranch dressing brands have eggs), beef jerky, fruit leather.  He even gets Noosa Yoghurt where the frivolous use of the ‘h’ stands for “heck of a lot of money”.  That ‘h’ may also stand for “holy smokes, this is delicious”.  Of the luxury yogHurt, Owen will take a few bites of it, but it’s still not large amounts.

I try to keep focusing on the fact that he is still leaps and bounds ahead of where he was this summer when he wouldn’t swallow.  If I can get the spoon in his mouth before he slaps my hand away, he does swallow it.  He’s continuing to sample new textures and flavors, even if he’s not eating, he does explore foods most of the times that we sit to eat.  Also, each session at the table is great for his fine and gross motor skills.  He’s starting to throw food (not one of my favorite milestones), he’s really got that gravity concept and pincer grasp down.  He pinches food with his thumb and index finger and releases it to the floor with a smile (some milestones are much more exciting to this mom than others) and he’s communicating wonderfully when I say, “Owen do you want to eat?” and he shakes his head emphatically “no” (excuse the mellow drama, but… “just stab me in the heart, Owen”).

Just behind, “I will not give up.  I will not give up.  I will not give up” is “Thank God for g-tubes, Thank God for g-tubes, Thank God for g-tubes”.

I’d been warned by many that this would likely happen several times in his learning to eat.  I do realize that learning is not linear.  I can rationalize it to death.

Truth is, going backwards stinks.  But Owen won’t hear it from me.  “I will not give up.  I will not give up.  I will not give up…..”

Owen’s TV Debut

I hope everyone is feeling full and content from a wonderful Thanksgiving! I know I said I wouldn’t post today, but we had a visit from WCCO reporter Rachel Slavik and cameraman, Joe to do a story on Owen’s first time enjoying a Thanksgiving meal. Thought you’d love to see a little slice of our day in this newsclip.

Also, thank you, Cate and Rita at Gillette Children’s Specialty Healthcare for taking an interest in Owen and helping spread his story.

Here’s a (very grainy) picture of Owen watching himself on TV.

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