About

Typically, when you have a premature baby, one of the first things you will hear is how the next several weeks/months, while the baby is in the hospital, are going to be like a roller coaster ride.

While I get the idea, it’s an analogy that’s always gotten a little under my skin.  Roller coaster rides are for amusement and entertainment.  They are a sense of freedom as the wind blows through your hair and you let out thrilled screams of joy as you anticipate the next drop, turn or loop.  Your adrenalin rush comes from a relatively safe, controlled and predictable ride.  You choose to strap into the seat and it’s over in a just a few minutes.  When you have a sick baby there is no sense of freedom, there is no predictability to the drops, turns and loops, there are no seat belts and it certainly is not a self-chosen or short journey.

This blog isn’t about the cliché of a neatly packaged roller coaster ride.  It’s about the rest of the story – particularly the story beyond the first year.  For his first year, I’ve kept a CaringBridge journal to share Owen’s story with his followers.  Like in CaringBridge, this blog is to keep Owen’s followers apprised of his health and development.   But here, I will also go further.  A preemie story isn’t just about the preemie and the story doesn’t end at the NICU door or one-year-old or any other magic age.  This blog is about learning to be a Stay at Home Mom to a special needs baby and typical needs boy.  It’s about healing from the hell of watching our baby, and the babies around him, fight to live.  It’s about the amazing doctors and nurses and therapists and teachers and family and friends that have helped, and are still helping, Owen reach his maximum potential.  It’s about miracles and superpower human spirit.  It’s about bringing awareness to the issues that we, and so many micro preemie families, experience.  And finally, it’s about connecting with other moms and dads who are going through their own journey with a preemie or a special needs child.

Thank you for reading.  Please feel free to leave comments and questions and share with anyone you feel might be interested in our story.

All Rights Reserved Pichette Photography, LLC

All Rights Reserved Pichette Photography, LLC

11 thoughts on “About

  1. I don’t check into LinkedIn often but I did see you changed your status
    Congrats on your two beautiful children.
    I am now a very proud grandfather of a 15 month old grandson.
    I think of you often ( with fond memories) of our time at Polaris

    Keep posting. I now have a reason to check up on you
    Take care
    RK

    • RK! I’m so happy you posted. Congrats on the Grandson. Owen and I would love to meet you for lunch sometime this summer if you’re up to it. He, and Kellen, are red-heads, so I’m sure they will feel like family to you.

  2. Pingback: 90 Days of Blogging | Ain't No Roller Coaster

  3. You blog looks great and I can empathise with the sentiments you express here. Our 2nd daughter was born slightly later than Owen, at 26 weeks and 4 days. It did not feel like a rollercoaster and that phrase also grated with me. I’ve also felt a bit irked at times when reading supposed statistics about preemies, since most are never followed up beyond the age of 5, so I’ve written a few articles about this.

  4. Our baby boy was just born 9 days ago at 24 weeks, 6 days… Our NICU journey is just beginning, and in the midst of raging hormones and all of the shock of his birth, I’ve been trying to learn more about what life might be like for other 24weekers… Your blog has been informative and encouraging, and helpful because you express so much of what I am feeling. Thank you for sharing your story.

  5. What a wonderful blog. There was nothing like this when I had my preemie. Support is the most important thing to help you get through those first years. Knowing that there are others out there that are just like you and can guide you. Except for the medical staff I had no one. Thanks so much for sharing. You have a beautiful family.

    After 24 years I still take a deep breath when I think of what my family went through and others will now face. The first 24 hours, the first year, that first day at school….all the milestones NICU babies encounter, the overwhelming medical bills, doctors giving you updates when you can’t even remember your name, all the questions from people you encounter about the Apnea Monitor or other equipment, etc. Those feelings of despair dont go away! I have a healthy adult thanks to the efforts of the nurses, doctors, and medical professionals who helped guide us through the process. My pediatrician became my best friend and I had his cell number on speed dial. With all of this, I am so grateful to have gone through this process. It changed my life. I never go a day without telling my family I love them. I wake up each day and thank God for our family. I appreciate the little things in life so much more and have taught my boys the same thing.

    I look at your beautiful family and know you are so proud, thankful, and blessed. Sharing this with others is awesome. However, preemie moms will always have that place buried deep within their soul that never forgets. Hugs!!!

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