It’s been a year since I’ve updated the look of the blog. There are still some changes coming, but today I’ve added some recent pictures. The boys have changed so much in the last year. Instead of a baby and a toddler, I have a toddler and a little boy.
I looked through the pictures that Tonja from Pichette Photography took for our family last month and got the warm fuzzies. We look so relaxed! Life is completely different today than it was a year ago. I’m still a mom to two boys with unique needs, but today my fear is what dangerous stunt Owen will try from one minute of the next…that’s a far cry from the constant fear being when we’d end up in the PICU next. That’s not to say that our life is typical today, but we have started to find our groove of what our new normal looks like and the worries for Owen are getting less and less severe. It’s progress and it deserves to be celebrated. Thank you, Tonja for helping capture it. (Now, if I could get Tyra Banks to come teach me how to have a genuine smile with my mouth closed, we’d be all good. Sorry Kellen and Owen, it looks like you inherited the mouth-wide-open smile too.)
As I post these happier times, I won’t apologize for where we are, but I do want to leave a message for those families who are still waiting get to this point. I hope you get here soon. I won’t tell you, “it get’s better”. Not because I don’t believe it won’t get better, but because, I want you to know that I am not going to minimize how you’re feeling today. We are on this journey together. Some further ahead, some further behind and through each other we can always remember the lesson of the zebra whose black and white color reminds us that with life’s greatest challenges we also find our greatest joys. (Many thanks to the amazing reader who sent this costume to Owen. She knows who she is and she and her two boys have a special place in my heart. I know it, we will have a cross-country play-date one day.)Ain't No Roller Coaster