A Little Refresh

It’s been a year since I’ve updated the look of the blog.  There are still some changes coming, but today I’ve added some recent pictures. The boys have changed so much in the last year.  Instead of a baby and a toddler, I have a toddler and a little boy.

I looked through the pictures that Tonja from Pichette Photography took for our family last month and got the warm fuzzies.  We look so relaxed!  Life is completely different today than it was a year ago.  I’m still a mom to two boys with unique needs, but today my fear is what dangerous stunt Owen will try from one minute of the next…that’s a far cry from the constant fear being when we’d end up in the PICU next.  That’s not to say that our life is typical today, but we have started to find our groove of what our new normal looks like and the worries for Owen are getting less and less severe.  It’s progress and it deserves to be celebrated.  Thank you, Tonja for helping capture it. (Now, if I could get Tyra Banks to come teach me how to have a genuine smile with my mouth closed, we’d be all good.  Sorry Kellen and Owen, it looks like you inherited the mouth-wide-open smile too.)
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As I post these happier times, I won’t apologize for where we are, but I do want to leave a message for those families who are still waiting get to this point.  I hope you get here soon.  I won’t tell you, “it get’s better”.  Not because I don’t believe it won’t get better, but because, I want you to know that I am not going to minimize how you’re feeling today.  We are on this journey together.  Some further ahead, some further behind and through each other we can always remember the lesson of the zebra whose black and white color reminds us that with life’s greatest challenges we also find our greatest joys.  (Many thanks to the amazing reader who sent this costume to Owen.  She knows who she is and she and her two boys have a special place in my heart.  I know it, we will have a cross-country play-date one day.)

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© Copyright Tatum, All rights Reserved. Written For: Ain't No Roller Coaster

8 thoughts on “A Little Refresh

  1. Love the update and photos! It’s ironic because today we took our red headed 18 month old (26 weeker) to his first sneak peak at his future daycare/preschool that he will begin next month. On my drive from work to meet my husband and son, I thought about how this is the first time since he was born that I feel like this is a “normal” thing in our lives (he has been watched in our home by his grandmothers). I feel like I’m finally breathing and not worrying about a potential trip back to the hospital. My internal anxiety keeps getting calmer and calmer. I love your reminder to the others who are not on the other side yet…it WILL come. Hang in there!

  2. I think you are right, the new normal takes some getting used to but eventually you find your rhythm.

    On another note, You might not have Tyra’s closed smile look you definitely have the Smieyze or however the heck you spell smile with your eyes 🙂

    • Thank you, Erin. It’s nice to meet you, I’m glad you introduced yourself and your blog. My cousin’s son has William’s Syndrome. They live in another part of the country, so I know very little, but I’ll be interested in learning more. I’ve added you to my BlogLovin’ feed.

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  4. Pingback: Returning to work after a medically fragile childAin't No Roller Coaster

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